The web has become the world’s largest source for medical information. Reputable sites can be excellent starting points for someone with a diagnosis and many questions. By searching each site, you can find summary information about your issues. Use caution, though, especially in chat rooms other unmonitored forums. Information in these forums are anecdotal and may be misleading or totally wrong. Here are some recommended sites:
The Center for Disease Control and Prevention's site, with searchable information and statistics on many health topics, including arthritis.
From the National Institutes of Health (NIH),a verycomprehensive site with information about clinical trials, drug evaluations, anddisease-specific therapies, in addition to general topics.
Site sponsored by Edward Wagner and the Robert Wood Johnson Foundation to help organizations interested in improving chronic care management.
The Job Accommodation Network provides help with questions about workplace accommodations and the Americans with Disabilities Act (ADA) or related legislation.
Mayo Clinic’s consumer site, offering health and medicalinformation, self-improvement strategies, anddisease management tools.
Medline Plus is another comprehensive site from the NIH with a medical encyclopedia, medical dictionary, recent medical news, and drug and health information.
This site, from the National Center for Complementary and Alternative Medicine, lists alerts and advisories about treatments and medications. It also offers information about alternative medicine and links to conventional medical topics and information.
The American Psychiatric Association is the world's largest psychiatric organization representing more than 36,000 psychiatric physicians from the United States andaround the world.
The American Psychological Association is the U.S. scientific and professional organization representing psychology.
The Society for Participatory Medicine is devoted to promoting a movement in which networked patients shift from being mere passengers to responsible drivers of their health, and in which providers encourage and value them as full partners.
As the name implies, this site offers information about health fraud and current concerns about medications and treatments. It lists consumer protection agencies and services and includes comments about questionable services, websites, advertisements, and products, as well as nonrecommended sources of health advice.
A comprehensive, searchable site that offers information forthe newly diagnosed, expert advice, and extensive general health resources.
This nonprofit organization is dedicated to promoting health advocacy in Washington State, empowering patients and improving healthcare outcomes. Find out everything you need to know about health advocacy.
QuitDay.org helps communities around the world become smoke-free and healthy.
Another source of information for patients is online newsletters. These may address a specific symptom or illness. They may also have a retail function and/or membership requirements. However, the summary of news and research that they offer can be helpful to patients trying to keep abreast of progress in medical research on the causes of illness, diagnostic tests, and the latest treatment options.
This newsletter is subtitled “commerce with compassion and publishes recent research on fibromyalgia and chronic fatigue and also markets vitamins and supplements.
Fibromyalgia Network: www.fmnetnews.com
This newsletter is dedicated to fibromyalgia treatment and research news. They do not accept advertisements endorsements or pharmaceutical company grants.
ICA Update—ICAeNews: www.ichelp.org
The ICA Update is an award-winning quarterly magazine from the Interstitial Cystitis Association with in-depthstories about interstitial cystitis (IC) research, treatment,and lifestyle issues. The ICA Update is a benefit of membership in the Interstitial Cystitis Association (ICA). Donors who make an annual gift of $45 or more to the ICA also receive this unique magazine.
Pain Medicine News: www.painmedicinenews.com
This excellent newsletter offers information in all areas around the treatment of pain.
The National Pain Report: www.americannewsreport.com/nationalpainreport
A site filled with articles, research updates and helpful information in all subjects around pain. There is also a feature called My Stories for patients to submit their own experiences with pain.
Patient Empowerment: www.patients.about.com
This feature of about.com includes a wealth of information. Columns by patient advocate Trisha Torrey are insighful are insightful and helpful.
Support for Children, Caregivers and the Disabled
Raising a Child with CFS
Routines and Children with Disabilities
Raising Children Network
Royal Children’s Hospital
50 Flemington Road
Parkville Victoria 3052
Beneficial Activities for Kids with Special Needs
1412-1414 Pine St.
Philadelphia, PA 19102
The Ultimate Guide to Flying with Autistic Children
Jaco Aerospace and Industrial
2050 Lincoln Ave. Pasadena, CA 91103
Teaching Students with Special Needs
Family Education Network
501 Boylston Street,
Suite 900 Boston, MA 02116
US News University Directory
Obesity and Children with Special Needs
c/o Community Gatepath
350 Twin Dolphin Drive Ste
123 Redwood City CA 94065
Home Accessibility Costs
14023 Denver West Pkwy Bldg.
64 Golden, CO 80401
Chronic Fatigue in the Military
The Essential Guide to Traveling with a Medical Condition http://www.insurancewith.com/travelling-with-a-medical-condition/
CDC Chronic Fatigue Resource