In the Kingdom of the Sick: A Social History of Chronic Illness in America, by Laurie Edwards, Walker Publishing, April 2013. This profile from USA Today on Edwards book offers explanations for why the chronically ill, especially women, continue to be stigmatized: http://www.usatoday.com/story/news/nation/2013/04/10/kingdom-sick-chronic-illness/2067779/
My Grandfather's Blessings: Stories of Strength, Refuge and Belonging, Rachel Naomi Remen, Riverhead Trade, 2001.
Remen, a cancer physician and master storyteller, uses her muminous stories to remind us of the power of our kindness and the joy of being alive.
Critical Condition: How Health Care in America Became Big Business and Bad Medicine, Donald Bartlett and James Steele, Doubleday, 2004.
These Pulitzer prize winning investigative journalists reveal how health care in America operates and how it got that way.
How to Be Sick. A Buddhist Inspired Guide for the
Chronically Ill and Their Caregivers, Toni Bernhard, Wisdom Publications,
Bernhard, a former law professor who became
ill in her prime, origination and the four noble truths help her cope with limited energy and frequent enforced solitude.
Sick and Tired of Feeling Sick and Tired, Paul J.
Donoghue and Mary Elisabeth Siegel, W. W. Norton & Company (July 2000)
This self-help book by two PhD psychologists
(one of whom suffers from multiple
sclerosis), is an explication of what it means to live with an invisible chronic illness and offers
advice and guidance to patients.
Critical: What we Can Do About the Health Care Crisis, Tom Daschle, St. Martin's Press, 2008.
An insightful analysis of our current health care system and what we can do to improve it. Daschle's informed opinions provided much insight and sensible options for change.
Getting Real About Chronic Illness in Your Twenties and Thirties, Laurie
Edwards, Walker & Company; First Edition (June 2008)
Edwards cites real lives to illuminate such
matters as the pitfalls of explaining rare
and/or invisible illnesses and addressing the financial downside of chronic illness. She offers flexible approaches to
enabling young, chronically ill
workers to stay in the workforce. She is a patient with multiple diagnoses, primarily a genetic respiratory disease.
The Chronic Illness
Workbook: Strategies and Solutions for Taking Back Your Life, Patricia
Fennell, New Harbinger Publications, (1st edition October 2001)
Based on her own research, Fennell offers a
coping model that readers can use
to navigate the physical, psychological, and social effects of their illness. The author identifies four
phases of chronic illness and describes
skills to manage each phase.
Chronically Happy: Joyful Living in Spite of Chronic Illness, Lori Hartwell, Poetic Media Press (October 2002)
This book is a tool to shape a life with
chronic illness using anecdotes and workbook-style
exercises. The author covers a range of subjects from dating, to working, to building self-esteem and deepening relationships. Hartwell is a kidney
patient who has endured both dialysis
and multiple transplants.
Just Fine: Unmasking Concealed Chronic
Illness and Pain, Carol Sveilich, Avid Reader Press, (September 2004)
Sveilich, a counselor, interviewed and
photographed people who live with a wide
variety of concealed disorders. She explores the juxtaposition of looking one way while feeling another with
numerous medical and mental
A Delicate Balance:
Living Successfully With Chronic Illness, Susan Milstrey Wells, Da Capo
Press (July 2000)
Wells is a patient with multiple diagnoses,
including interstitial cystitis
and fibromyalgia. She offers a mix of useful information and real-life stories. The book includes
advice on finding a doctor, accepting
illness, working with a chronic disease, maintainingrelationships and searching for both conventional and